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Table 4 Views of community living individuals with traumatic spinal cord injury about self-management program delivery

From: Views of people with traumatic spinal cord injury about the components of self-management programs and program delivery: a Canadian pilot study

Component

N= 99

n (%)

Mode of delivery

 

Internet-based

39 (39.4)

A series of DVDs

7 (7.1)

In person, in the community

30 (30.3)

Other (telehealth system, brochure, by telephone, etc.)

23 (23.2)

Format

 

One-on-one (i.e., one facilitator to one client)

29 (29.3)

Individually (e.g., the client views a webinar individually)

22 (22.2)

In a group setting with other individuals with traumatic spinal cord injury

10 (10.1)

In a group setting with other individuals with traumatic spinal cord injury together with their caregivers

9 (9.1)

In a group setting with other individuals with traumatic spinal cord injury together with their caregivers, but with opportunities for separate discussions

21 (21.2)

Other

8 (8.1)

Construction of program components

 

Similar age (=yes)

40 (40.4)

Same gender (=yes)

29 (29.3)

Similar level of injury (=yes)

74 (74.7)

Individuals with non-traumatic SCI (=yes)

26 (26.3)

Individuals in a wheelchair (=yes)

28 (28.3)

Other (=yes)

16 (16.2)

Timing

 

During the acute care period

7 (7.1)

During the rehabilitation period

42 (42.4)

During the transition from rehabilitation to the community

29 (29.3)

Once accustomed to living in the community

11 (11.1)

Other

10 (10.1)

Need for follow-up sessions or program

 

Yes

88 (88.9)

No/Don’t know

11 (11.1)

Follow-up periods***

 

Meet again as a group 1 or 2 years after

18 (18.2)

Regular contact with an individual(s) from the group

25 (25.3)

Regular contact with a health care professional

31 (31.3)

Other

16 (16.2)

Program leaders

 

Health care professional (e.g., nurse, rehabilitation specialist)

38 (38.4)

Individual(s) who has/have a traumatic spinal cord injury

19 (19.2)

Combination of any of the choices above

38 (38.4)

Other (e.g., non-health care professionals, individual(s) who has/have a neurological conditions)

4 (4.0)

Program organizers

 

Family physician

3 (3.0)

Physiatrist

3 (3.0)

Case manager

4 (4.0)

Staff in the acute care team

1 (1.0)

Staff in the rehabilitation team

37 (37.4)

An organization such as the Canadian Paraplegic Association

41 (41.4)

Staff in the home care team

2 (2.0)

Other

8 (8.1)

  1. ***Based on 90 participants.