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Table 1 Brief summary of several stroke registries in the world

From: The University of Texas Houston Stroke Registry (UTHSR): implementation of enhanced data quality assurance procedures improves data quality

Stroke registry

History and objectives

Harvard Registry

Oldest stroke registry in the US (1971–1984) [3, 4].

Paul Coverdell National Acute Stroke Registry (PCNASR)

Since 2001, with funding from the Centers for Disease Control and Prevention (CDC), the PCNASR was established in collaboration with the state health departments in Georgia, Massachusetts, Michigan, Illinois, North Carolina, Ohio, Iowa, Arkansas, California, New York, and Wisconsin [68] with an overall goal of tracking and improving the quality of hospital-based acute stroke care currently available to reduce mortality attributable to stroke, prevent stroke-related disabilities, and prevent recurrent strokes [6].

New England Medical Center Posterior Circulation Registry (NEMC-PCR)

From 1988–1996 the NEMC-PCR thoroughly evaluated all posterior circulation ischemia patients using brain imaging, vascular studies, and appropriate cardiac and hematological investigations to study the epidemiology and etiology of specific types of strokes [911].

Get With The Guidelines (GWTG)

Since 2003, the American Heart Association/American Stroke Association has developed a national stroke registry and quality improvement program, known as Get With The Guidelines (GWTG) [5, 1215].

Swedish Stroke Register (Riks-Stroke)

Riks-Stroke was established in 1994 in which patients are followed during the first year after stroke [16].

Registry of the Canadian Stroke Network (RCSN)

RCSN was established in 2001 to allow for the assessment and monitoring of stroke care delivery and outcomes [17].

Australian Stroke Clinical Registry (AuSCR)

AuSCR was established in 2009 to provide national data on the process of care and outcomes for patients who are admitted to hospitals with acute stroke or transient ischemic attack [18].

South London Stroke Register (SLSR)

SLSR is a population based stroke registry that includes stroke patients of all age groups between 1995–1999 [19, 20].

Acute Stroke Registry and Analysis of Lausanne (ASTRAL)

ASTRAL is a prospective project designed to assemble state-of-the-art data for all ischemic stroke patients hospitalized in the only stroke unit in the wider area of Lausanne, Switzerland which was initiated in 2002 [21].

Austrian Stroke Unit Registry

Since 2003, this registry is administered by the Gesundheit Osterreich GmbH (Health Austria GmbH) in which 26 out of the 32 existing stroke units in Austria take part [22].

Arbeitsgemeinschaft Deutscher Schlaganfall-Register (ADSR)

Established in 1999, ADSR was developed by the German Stroke Registries Study Group that has defined a "Minimum Dataset" for the evaluation of quality indicators of stroke treatment in Germany in which six regional stroke registries collaborate [23, 24].

Danish stroke registry and contribution to the World Health Organization Monitoring Trends and Determinants in Cardiovascular Disease (WHO MONICA) Project

During 1982–1991, within the Glostrup Population Studies in Copenhagen County, a Danish stroke registry was established with the objective of monitoring stroke events in the community over a 10-year period and contributing data to the World Health Organization Monitoring Trends and Determinants in Cardiovascular Disease (WHO MONICA) Project [25, 26].

China National Stroke Registry

Since 2007, the China National Stroke Registry recruited consecutive patients with diagnoses of acute cerebrovascular events from 132 hospitals that cover all 27 provinces and four municipalities (including Hong Kong) in China [27].

Taiwan Stroke Registry (TSR)

Since 2006, TSR is sponsored by the Taiwan Department of Health that involves 39 academic and community hospitals and covers the entire country. TSR is the first nationwide effort in Taiwan to establish a reliable national stroke database for assessing the quality of stroke care and identifying areas that require improvement [2].

Japanese Standard Stroke Registry Study (JSSRS)

Since 1998, this registry has accumulated records from 163 Japanese institutions [28].